Category Archives: Uncategorized

First point of order:  daratumumab infusion #6 is a thing of the past!  I was at the hospital at 6 AM, but somehow my name had fallen off of the schedule, so it took a little while to get me … Continue reading →

Yesterday’s Round #5 was a walk in the park.  Pretty much.  I got the concentrated version of the daratumumab (500 ml vs. 1000 ml), so the infusion process was significantly shorter.  Although check-in was still 6 AM, we didn’t get … Continue reading →

We’ve been warm for two days–in the high 90s, with high humidity.  We get a little bored on days like this.  It’s too hot to go outside–the Rochester wind makes it feel like you have stepped into the hot cycle … Continue reading →

Checked in today at 5:50 AM with Caribou coffee in hand for daratumumab infusion 4.  Took my Benadryl, then instant nap.  Chelsea, our favorite nurse, brought a yacht-sized comfy chair for David today, so he got a nice nap as … Continue reading →

When the sun comes out in Rochester, the festivals begin–hence our adventure to Rochesterfest. 27 food vendors, including corn on a stick, gyros, curly fries, a milkshake, and a Minneapple pie (that one was all me).  Hot air balloons!  Music!  … Continue reading →

Daratumumab infusion #3 was yesterday–nailed it.  Kind of.  This time the medicine was much more concentrated, in a 500 ml bag, not a 1000 ml bag, but same amount of Daratumumab.  I had a slight reaction (and I mean really … Continue reading →

Daratumumab Infusion 2 over and done!  We were there at 6 AM, and we were out the door by 2 PM.  Because of my reaction on Day 1, Dr. Zand treated today as a bit of a do-over, and the … Continue reading →

Today is Saturday, and my first infusion was five days ago.  The side effects have been tolerable–mostly low-grade nausea and fatigue that is extreme at times.  We will pack up and head back to the hospital on Monday morning, with … Continue reading →

We made it to the Domitilla Building at the Mayo St. Mary’s Campus by 5:45 AM yesterday for the first daratumumab treatment.  The receptionist told us we were “early,” a sentiment with which David and I completely agreed.  Chelsea, my … Continue reading →

When I first set up this blog site, I had the very best of intentions to document the many places I planned to travel.  With the exception of my incredible 2013 trip to Cambodia and Laos with Delaney and Kendall, … Continue reading →